"Baylee Bo Blue" is the just as beautiful as the little girl it is named after. Baylee Bo Condon is from Mather, California and her story is below:
Baylee was born on May 14, 2016 and was a healthy baby, until around 6 months old. She became very fussy and just wanted mom to hold her all the time. She cried with diaper changes, and wasn't nursing much. After a few doctors appointments which we were told she was teething and to give Tylenol, we finally got sent to the ER for blood work where we found our her hemoglobin was dangerously low at 4.2.
The doctors were suspecting that a virus was suppressing her marrow, but had to do a bone marrow biopsy to rule out leukemia. The biopsy was positive and she was diagnosed with Infant Acute Lymphoblastic Leukemia, a very rare and aggressive form of leukemia.
We started chemotherapy that week and she responded very well to the induction therapy so her plan was 2 years of chemo. During the 2 years on treatment she had over 6 months in the hospital, horrible reactions to the chemotherapy, countless blood and platelet transfusions and over 20 spinal taps that put chemo into her spinal fluid. She suffered huge gross motor delays, oral aversions, and an acute liver injury which ended treatment 6 weeks early.
After her chemotherapy was done, she thrived, she began to walk, and graduated feeding therapy, and began to be a normal toddler.
Father's Day 2019 she had an unexplained fever. Still having a
central line, we had to go to the ER for cultures and we found out she
had relapsed, just 7 months off treatment. After scrambling around
calling hospitals all over to see what the next step would be, we
decided to do a block of chemo and see what her disease level was
afterwards. To everyone's surprise, she went back into remission and
we were planning on a stem cell transplant. We did a month of an
immunotherapy prior to transplant. She had a haplo transplant on
October 11, 2019. Mom was her donor. We spent 3 months away from
home during transplant.
did incredibly well throughout the transplant process with minimal
complications. She has monthly bone marrow biopsy and still gets lab
work quite often. Baylee is such a joyful child. She loves having
her nails painted; all things Disney and just being home and not in
Pair with our base/top coat, Hebrews 11:1, for extended wear.
All net proceeds go Baylee and her family. Therefore, we appreciate your understanding that we are unable to provide refunds or exchanges.